Resources for Members

Venture Philanthropy: Is it for Me? [September 28, 2022]

We held a one hour session where Mark Roithmayr, CEO Alzheimer’s Drug Discovery Foundation (a pure Venture Philanthropy nonprofit), interviewed John Walter, CEO Food Allergy Science Initiative, who has helped launch three separate venture philanthropy initiatives in his career. Mark picked John’s brain on the thinking behind the launch at…

From Thankless to Springboard: Rethinking Annual Reports [September 21, 2022]

From Thankless to Springboard: Rethinking Annual Reports A thankless task? A never-ending grind? A boring waste of time? Perhaps, when done poorly. However, annual reports can also be a great way for your organization and community to reflect on the progress made in achieving your mission and the numerous challenges…

Nonprofits’ Role in Inclusion of People with Disabilities in the Biomedical Workforce [September 14, 2022]

For its September meeting, the DEI working group invited a panel of three distinguished researchers to share their stories and help HRA members learn what actions biomedical research funders can take to reduce barriers and advance both the careers and scientific discoveries made by those who identify as having a…

Utilizing Visualization for Program Evaluation: Techniques and Strategies [September 22, 2022]

The Program Evaluation community learned more about Utilizing Visualization for Program Evaluation: Techniques and Strategies at its September meeting. Speaker: Dr. Katy Börner, Indiana University in Bloomington, Professor of Engineering and Information Science Summary: Program evaluation is an important aspect of the program life cycle for funders. While many program evaluations…

HRA’s Exploring the Value of “Open” (EVO) Program Resources

Is “Open Science” just the latest fad or is it really an important tool to advance discovery? If you are unsure, OR if you sincerely believe open science can advance discovery but need help implementing policies to facilitate open science, the EVO program is for you. HRA’s Open Science Community…

Improving LGBTQ+ retention in STEM: A transatlantic perspective on current barriers and best practices [July 13, 2022]

For its July meeting, the DEI Community learned more about increasing LGBTQ+ retention in STEM: Speakers: Dr. Colbie Chinowsky and Shane Coffield Summary: Increasing LGBTQ+ retention is a key part of improving the diversity of perspectives and experiences necessary to drive high-quality scientific innovation. The issue of LGBTQ+ attrition has become more clear…

Registry and Biorepository Community Call [June 9, 2022]

Registries serve many purposes to meet the needs of patient advocacy organizations. The first half of the call featured an invited speaker to discuss an Across Healthcare registry platform, Matrix (https://acrossmatrix.com/) .The Matrix platform relies upon emergent data technology to enable direct-to-participant and multi-stakeholder portals, applicable both for research and…

Storytelling as a sensemaking strategy [June 22, 2022]

The Communications Community hosted a session on how to think about storytelling as an opportunity to inspire interest and create change. We heard from Liz Neeley, CEO of Liminal, who drew from literature on uncertainty and risk communication, misinformation, psychology, narrative identity, and sensemaking to explore storytelling strategies for communities,…

Venture Philanthropy: Is it for Everybody?[June 13, 2022]

Building on past presentations where we spotlighted the individual efforts of the Leukemia & Lymphoma Society, Foundation Fighting Blindness, and JDRF, in another of our Venture Philanthropy series we heard from Mark Roithmayr, CEO of the Alzheimer’s Drug Discovery Foundation (ADDF). Mark gave a brief presentation on the ADDF’s venture…

Scientists from Minority-Serving Institutions and Their Participation in Grant Peer Review Webinar [June 8, 2022]

For its June meeting, the DEI Community learned more about how peer review may contribute to funding disparities across racial groups and between minority-serving institutions (MSIs) and traditionally White institutions (TWIs). We heard from two of the authors of the publication  “Scientists from Minority-Serving Institutions and Their Participation in Grant…

Using Logic Models – to develop programs and measure impact [May 26, 2022]

The Program Evaluation Community held a call to learn more about the value of logic models in both designing programs and measuring impact. Attendees came prepared to share their own challenges and success and used this opportunity to pose questions to HRA colleagues. Questions addressed: What are the metrics you…

Open Mic: Training and Mentorship for Early Career Scientists from Traditionally Underrepresented Groups [May 12, 2022]

This conversation was a continuation from the HRA Spring Meeting session “How to Build Mentoring and Community Support Platforms To Support Diversity, Equity and Inclusion In Your Scientific Network”. The objective of this discussion was to share organizational programs and strategies that have been implemented by HRA members with the…

AHA Precision Medicine Platform: Cloud-enabled Workspaces to Research Webinar [May 10, 2022]

The process of research has evolved. Researchers around the globe are collaborating in real time, sharing data, and using the power of cloud-computing to analyze data. The federal government, industry and many organizations have enabled cloud-based work environments for their awardees. This presentation introduced attendees to American Heart Association’s Precision…

Enhancing Program Performance Using Logic Models [HRA Members Meeting, Virtual, Spring 2022]

This session briefly reviewed the concept of a logic model. It focused on how logic models can be used in practice to develop a new program or modify an existing program, and to create an evaluation plan which can inform ongoing learning and planning to increase program effectiveness. After the…

Innovative Models to Expedite Research Funding [HRA Members Meeting, Virtual, Spring 2022]

Is the current process of scientific funding too slow? Implementing innovative processes to decrease time between announcement to award is one way organizations are changing the status quo. This session explored rapid funding – how various organizations have worked to streamline their application and review processes to accelerate research funding,…

How to Build Mentoring and Community Support Platforms To Support Diversity, Equity and Inclusion In Your Scientific Network [HRA Members Meeting, Virtual, Spring 2022]

Early-career investigators (ECI) require mentoring to succeed to their fullest potential and make it over the ‘career valley of death.’ Since diversity increases the strength of innovation, nonprofit funders may be considering setting up specifically-focused mentoring/training/support programs forblack, Indigenous and people of color (BIPOC) or other marginalized early-career investigator (ECI)….

Open Science:  Tortoise and the Hare [HRA Members Meeting, Virtual, Spring 2022]

Is your org moving so slowly in implementing open science policies that you may forgo even a participant ribbon? Is your org moving so quickly that you have taken some wrong turns? Open science (including data sharing) was crucial to mitigating the effects of COVID-19. Sharing results and data helped…

Achieve More Inclusivity, Trust, and Patient Engagement in Clinical Trials Webinar [April 13, 2022]

In this webinar HRA members learned about Acclinate. Acclinate integrates culture and technology to achieve more inclusive clinical research. This presentation explored how Acclinate uses digital engagement to influence health knowledge, clinical trial hesitancy, intention to engage in studies, and actual participation among various groups. “#NOWINCLUDED community” is Acclinate’s method…

Logic Models

Listed below are some of the resources provided during the April 21, 2022 “Enhancing Program Performance Using Logic Models”  session during the spring virtual members meeting. Resources for “intro to logic models”: Logic Model definitions NSF Logic Model Template W.K. Kellogg Foundation Logic Model Summary of W.K. Kellogg Foundation Logic…

Misconduct and Ethics Community call [March 15, 2022]

The March 15, 2022 call for the Misconduct and Ethics community focused on the intersection of funders and academia in mitigating  toxic workplace environments and unethical researcher behavior such as harassment (research misconduct is not the focus of this discussion). The webinar was a panel of outside speakers including Frazier…

Inventory of HRA Members Professional Development Strategies for awardees/alumni

Many HRA members provide mentoring, networking and other professional development opportunities and keep their awardees and alumni engaged with the mission of the organization. The google sheet found on the Members Only Documents page is an inventory of those strategies. If your opportunities aren’t listed please add them!  It is…

Funder’s Role in ECI’s Professional Development [Webinar, March 10, 2022]

The Research Workforce and Early Career Development Community held an Open Mic session on the Funder’s role in Professional Development for Early Career Investigators (ECIs). The Open Mic session started with brief presentations about BWF’s and Simon’s Career Development strategies which are detailed on this google sheet. We then heard…

Guide to Increasing Disability Inclusion by Tracking Participation

DEI Community Webinar with Disability & Philanthropy Forum [March 9, 2022]

In this webinar, Emily Harris (ED of the Disability & Philanthropy Forum) expanded our understanding of “disability” by citing examples. Physical and mobility (polio, limb difference) Sensory (Deaf/hard of hearing, blind/low vision) Intellectual and Developmental (IDD) (Down’s Syndrome, Autism, CP) Psychosocial/Mental Health (depression, bi-polar, ADHD) Learning (dyslexia, auditory processing disorder)…