KEY IDEAS: Introduction to the Disability & Philanthropy Forum
Key IdeasKey Ideas resources are created by the Health Research Alliance to summarize important take home points and action items from speaker presentations, listserv posts, or other mechanisms. This Key Ideas resource was created by the Inclusive Grantmaking Initiative. The resource is viewable as a PDF or a plain text Word…
Intro to “Health Open Research” (an F1000 platform) [April 25, 2023]
Document | WebinarOn this webinar HRA Members learned about Health Open Research (launched by F1000 in November 2022*) which is built on an existing collaboration with the AMRC, and welcomes submissions from all researchers (including those funded by HRA member organizations!) in health, medical and social care research. Utilizing F1000’s unique open research…
EVO Program Webinar Data Sharing and Policy Landscape [June 6, 2023]
Document | WebinarThe Explore the Value of Open (EVO) Program hosted a webinar on the topics listed below: Reviewed expanded policy worksheet(Kristen Ratan added columns for OSTP Nelson member guidance, NIH Guidance and added examples/comments) Steps towards a data sharing strategy Developing your policies Policy worksheet and decision matrix (updated) https://docs.google.com/spreadsheets/d/1z7zUPcAcCe8t7342PPta8DFZChtOA57urbp6axizWZ0/edit#gid=0 Alzheimer’s…
AI and Learning Language Models (LLM) Learning Community Open Mic [June 28, 2023]
WebinarThe first call of the newly formed AI and LLMs Learning Community was a discussion around policy development, implementation, and compliance, as well future events, including a possible breakout session at the Fall 2023 HRA Members Meeting (Chicago, Il). The policy discussion focused on the new NIH peer review and…
DEI Community Call: Open Mic – International Diversity [May 24, 2023]
WebinarHealth research is an international pursuit, with research being done across the world by scientists from every country. International scientists undoubtedly bring diverse perspectives to the health research field. However, diversity-focused initiatives within the United States vary in their inclusion of international scientists under definitions of ‘diversity.’ In this Open…
Leading Edge Symposium [May 17, 2023]
Document | WebinarEmpowering early career scientists and improving gender diversity of life sciences faculty at the highest levels What is Leading Edge? Leading Edge is an initiative to improve the gender diversity of life sciences faculty in the United States by providing women and non-binary postdocs with 1) a platform to present…
Grants Administration Community: Standing Monthly Open Mic [June 8, 2023]
Document | WebinarThe June open mic webinar Grants Administration Community was an open discussion starting with (1) international grantmaking/handling payments, (2) support for working parents—caregiving expenses, family leave considerations, and (3) handling rising postdoc salary and other inflation-related concerns.
Grants Administration Community: Standing Monthly Open Mic [May 11, 2023]
Document | WebinarThe May open mic webinar Grants Administration Community was an open discussion starting with (1) handling awardee institution transfers, (2) awardee as a party to the grant agreement, and (3) allowing applicants to “fix” applications after submission, grace periods, and other application submission considerations.
Grants Administration Community: Standing Monthly Open Mic [April 20, 2023]
Document | WebinarThe first open mic webinar Grants Administration Community was an open discussion starting with marketing/disseminating RFP/RFAs and questions around grants management systems (always a standing topic for discussion!)
Research Workforce and Early Career Community Call [April 19, 2023]
Document | WebinarThe Research Workforce and Early Career Community has identified several potential subgroups of activities or “workstreams”, driven by past interest and the evolving landscape of early career researchers in the biomedical workforce. On this call we started by focusing on ALUMNI NETWORKS as a mechanism of mentoring and retaining scientists….
Registry and Biorepository Learning Community call [April 27, 2023]
Document | WebinarFDA RWD & RWE Draft Guidance Discussion In recent years, the U.S. Food and Drug Administration has released several draft guidance documents related to real-world data and evidence, including one on registries. The Reagan-Udall Foundation for the FDA will present on important definitions, potential regulatory applications of registry data, and…
Registry and Biorepository Learning Community call [March 9, 2023]
Document | WebinarTopic: Advocating for your Registry/Biorepository with your Board Description: We all have (or may have to in the future) needed to justify the cost and strategy involved in our registry/biorepository programs to a governing Board or other leadership. Durghis session members came prepared to hear about examples in the following…
Explore the Value of Open (EVO) “Birds of a Feather” Series: Data Sharing [March 7, 2023]
Document | WebinarAs part of the EVO Program, HRA is hosting a series of working sessions for organizations with similar challenges to work together to explore and implement open science policies, practices, and compliance monitoring that is appropriate for your organization. In these “Birds of a Feather” sessions (BOFs), facilitated by Kristen…
State of the Alliance Presentation: Strategic Plan Progress Report [February 22, 2023]
Document | WebinarOn behalf of HRA’s Board of Directors, the Strategic Planning Committee, and the Strategic Planning Evaluation Committee, Maryrose Franko, gave a “State of the Alliance” presentation. She updated the membership on the progress we have made in implementing the strategies set out in the 2021 Strategic Plan. We also hope…
Strategies for collecting demographic data [March 13, 2023]
Document | WebinarMany HRA members want to collect demographic data consistently and equitably, in order to measure the impact of any strategies that are implemented. However, although HRA members are poised to collect data, some may be reticent to do so because of the recent affirmative action cases in the news and…
Misconduct and Ethics Community call [March 2, 2023]
Document | WebinarThe March 2, 2023 call for the Misconduct and Ethics community focused on learning more about the role of the ombuds in fostering a healthy research environment in a university setting. For this moderated discussion we learned: What is an ombuds? What does an ombuds do? What does an ombuds…
Listserv Responses: Return of Clinical Research Results [February 2023]
Listserv SummaryThank you to Erik Lontok, PhD, Director of Research, at the Barth Syndrome Foundation for compiling the responses to his listserv post on 2/13/2023. ADDITIONAL SHARED RESORUCES ARE WELCOME! Original Post for which Erik compiled responses in the “Return of Clinical Research Results” document: BSF is revising our clinical study…
Grants Administration Community: Planning for 2023 and Topics of Interest [February 9, 2023]
Document | WebinarThe Grants Administration Community addresses a wide range of operational issues of concern to funders of health research and training. The group curates resources for the HRA grants administration handbook, offers webinars, and hosts roundtable discussions on the vast topic area that is grants administration. In the year ahead, the…
Going beyond bibliometrics: A system to track the progress and impact of biomedical research funded by Susan G. Komen [February 8, 2023]
Document | WebinarThe HRA Program Evaluation Community co-chairs were excited to have Amy Dworkin and Kari Wojtanik from Susan G. Komen present on learnings from the launch of their Komen Product Tracking System to HRA members. Attendees heard about the development of this tracker, findings since launching it, lessons learned, and were…
EVO Webinar: “The 2023 Federal Year of Open Science Initiative” with NIH, NSF and NASA [January 18, 2023]
Document | WebinarHRA members had the opportunity to hear and ask questions about the policies that three federal agencies (NIH, NSF and NASA) will be implementing in response to the Nelson (OSTP) Memo and the 2023 Federal Year of Open Science Initiative. Speakers: NASA – Chelle Genteman, Program Scientist, NASA Transform to…
The Perils Facing Postdocs Today [December 14, 2022]
WebinarThe research workforce and early career community hosted a presentation and discussion with Tom Kimbis, the Executive Director and CEO of the National Postdoc Association (NPA) about challenges facing postdocs and how funders can address these challenges to improve retention in science. Today’s postdocs face an array of challenges, some…
Value of ORCID for funders – HRA (EVO) Program [September 13, 2022]
Document | WebinarWe followed the launch webinar with a webinar to discuss the “Value of ORCID for funders,” led by a team from the ORCID US Community consortium. We also heard a brief presentation from open researcher, Gary McDowell who will discuss using ORCID to track awardees.
EVO Program Launch – HRA (EVO) Program [September 8, 2022]
Document | WebinarThe EVO Program launch webinar covered the “what” of open science – open access publishing, the “FAIR” principles, data sharing, etc. Subsequent webinars will cover the “how.” How to develop and implement policies, but also tools to track compliance and measure impact.
Data Sharing: Why, How, and Measuring Impact – HRA (EVO) Program [November 10, 2022]
Document | WebinarThe NIH has issued a Data Management and Sharing (DMS) policy effective January 25, 2023, to promote the sharing of scientific data. One of the ultimate benefits of sharing scientific data, is to facilitate the development of treatments and products that improve human health. If you are interested in implementing your own data…