November Research Workforce and Early Career Community Call – Mentoring [November 14, 2024]
WebinarThe Research Workforce and Early Career Community hosted a special 90 minute discussion about mentorship on November 14th at 2-3:30PM eastern. Sarvenaz Sarabipour, PhD, from the University of Connecticut and Natalie Niemi, PhD, from Washington University at St. Louis presented data from their survey of early career researchers which identifies…
Diversity in Registry and Biorepository Research To Advance Precision Medicine [November 4, 2024]
WebinarThe Registry & Biorepository and DEI Learning Communities hosted a joint webinar on Diversity in Registry and Biorepository Research To Advance Precision Medicine. We heard from Janeth Sanchez, Acting Director of Health Equity for the All of Us Research Program about how their program engages populations underrepresented in biomedical research…
Using HRA Analyzer to understand non-profit funding for health research: Lessons from Doris Duke Foundation [October 30, 2024]
WebinarThe Program Evaluation Community hosted a dynamic discussion on using HRA Analyzer to assess grant data by health research areas. Betsy Myers and Kevin Sia shared results of their data for HRA member organizations, followed by a discussion on opportunities for expanded support of health research based on these findings….
Meet the Members Meeting Sponsors [Fall 2024 HRA Members Meeting; October 1, 2024]
MeetingLearn more about the Health Research Alliance member organizations that generously sponsored the Fall 2024 Health Research Alliance Members Meeting. Presenters Amy Laster, PhD Senior Vice President, Science Strategy and Awards | Foundation Fighting Blindness Preeti Subramanian, PhD Director of Vision Science Programs | BrightFocus Foundation Joan Levy, PhD Chief…
Career Advancement: Aligning Passion with Prosperity [Fall 2024 HRA Members Meeting; October 2, 2024]
MeetingThis interactive workshop explored how to align your passion with your goals to build a career that lights you up with purpose. No matter what stage you’re at in your career, the session covered actionable strategies for career growth that integrate your values and talents. Managers and leaders learned cutting-edge…
Partnerships: Two Sides of the Same Coin [Fall 2024 HRA Members Meeting; October 2, 2024]
MeetingPartnerships can be so much more than cofunding a research program. From partnering with corporations, to engaging with industry partners, to collaborating with other nonprofits and consortia, diversity in partnership is beneficial to furthering the goals of HRA member organizations. This session explored how our member organizations can partner with…
Unlocking Cures: Navigating the Therapeutics Frontier in Collaboration with the Federal Government [Fall 2024 HRA Members Meeting; October 1, 2024]
MeetingAs non-profits, we want to make sure any investments we make in potential new therapeutics are as impactful as possible. In this session, we explored how we can complement what federal agencies support in this space, and make sure we catalyze the therapeutics development ecosystem. We heard from NIH and…
How do Foundations Successfully Implement or Manage DEI Grant Programs in Light of Anti-DEI Legislation? [Fall 2024 HRA Members Meeting; October 1, 2024]
MeetingIn light of the recent Supreme Court decision on Affirmative Action, and other state anti-DEI legislation, foundations are at a crossroads when it comes to managing DEI grant programs. This session explored how Foundations can remain compliant with current legislation while offering grant programs that institutions can accept that continue…
AI in Grant Application and Management: Strategies, Risks and Considerations [Fall 2024 HRA Members Meeting; October 1, 2024]
MeetingArtificial intelligence tools are becoming widespread and more robust across various disciplines. This session focused on the promises and perils of AI for funders to integrate AI for efficient grant making process. What funder workstreams could be made easier, faster, or more insightful with artificial intelligence? What are the concerns…
Generative AI for Tracking and Communicating Research Impact [Fall 2024 HRA Members Meeting, October 1, 2024]
MeetingThe recent emergence of generative AI has many in the non-profit sector scrambling to keep up. This is especially true in terms of leveraging AI to measure, track and communicate the impact that research grant funding and its outcomes have on science and society. In this session, we heard use…
Welcome [Fall 2024 HRA Members Meeting; October 1, 2024]
MeetingThe Fall 2024 Health Research Alliance Members Meeting kicked off with remarks from Conquer Cancer, the ASCO Foundation, and ASCO; the meeting hosts. Christine Riordan, HRA’s new Executive Director, welcomed attendees to the meeting. Presenters Nancy R. Daly, MS, MPH Chief Executive Officer | Conquer Cancer, the ASCO Foundation Clifford…
Open Science Policy Template Language [September 26, 2024]
DocumentHRA has partnered with the Open Research Community Accelerator (ORCA) to develop and distribute open science policy template language for HRA members. The documents linked here were developed by Erin McKiernan and Greg Tananbaum from ORCA. There are two template documents available: Full Open Science Policy Template and Guidelines: This…
Open Science 102: Breaking Down Open Science Policy Template Language [September 26, 2024]
Document | WebinarDuring this Open Science Learning Community call, open science experts Erin McKiernan and Greg Tananbaum of the Open Research Community Accelerator (ORCA) presented on simple strategies for aligning your open science policies with emerging NIH and other federal requirements. Erin and Greg shared template language that HRA members can easily…
September Grants Administration Community Open Mic – Patient Advocates in Peer Review [September 25, 2024]
WebinarThis Grants Administration Community open mic featured a discussion about using patient advocates in the review process! We had pre-planned speakers and a lively discussion in which attendees shared their thoughts, questions, pain points, and pro tips. This webinar was a follow up to a question posted to the HRA…
September AI/LLM Community Call [September 10, 2024]
WebinarHRA’s Artificial Intelligence and Large Language Models Learning Community hosted Dr. Michael Pencina, a respected leader in AI, and Vice Dean for Data Science at Duke University School of Medicine. Dr. Pencina spoke about where AI is heading in the medical and science fields and also discussed CHAI, Coalition for…
Listserv Responses: Childcare Costs for Awardees Attending Scientific Conferences [August 2024]
Listserv SummaryThanks to Belinda Orland from the American Heart Association for starting a discussion about policies and practices for childcare costs incurred by awardees attending a scientific research conference. The document linked above summarizes HRA members contributions (available to HRA members only; you must be logged into the website to download…
August Registry and Biorepository Community Call – Best Practices Open Mic [August 6, 2024]
WebinarDuring this community discussion, attendees utilized their collective expertise to share their lessons learned around biobank clinical site partnerships (compensation, sample and data collection). They also briefly discussed sustainability models, longitudinal data collection strategies, and topics for upcoming webinars.
Program Evaluation Community Call: CSET Map of Science Demonstration [June 27, 2024]
WebinarThe Program Evaluation Community hosted an overview of the Map of Science tool developed by the Emerging Technology Observatory at Georgetown University’s Center for Security and Emerging Technology (CSET). This free online tool collects and organizes the world’s research literature, revealing key trends, hotspots, and concepts in global science and…
June Grants Administration Community Open Mic – Grants Management Systems [June 26, 2024]
WebinarThis Grants Administration Community open mic was a discussion of the recent Grants Management System Survey. Four HRA community members spoke about their experiences with their respective grants management systems: Joan New, Autism Speaks: Transitioning from an in-house system to Fluxx Kristin McGowan, OCRA: SmartSimple Kim Peters, ALS Association: ProposalCentral Sonia…
Follow-Up Discussion: Promoting Diversity in Clinical Trials [June 5, 2024]
WebinarThe DEI Learning Community hosted a working session on June 5 (1-2PM ET) to reflect and discuss further the call from May 1 on “Promoting Diversity in Clinical Trials”. The recording, slides, and related resources from the May 1 webinar are available on the HRA website (https://healthra.org/resources/promoting-diversity-in-clinical-trials-may-1-2024/). The goal of…
Therapeutic Development Learning Community Re-Launch [May 30, 2024]
WebinarIn this community call, the new co-chair team (Mary O’Reilly, Maaike Everts, Raeka Aiyar) facilitated an open discussion to reboot the Therapeutic Development (formerly known as Drugs and Other Therapy Development) Learning Community. This was an informal meeting to reconnect, hear from community members about their interests for future meetings,…
Open Science 101: First Steps to Implementing an Open Science Policy [May 29, 2024]
WebinarThe Open Science Learning Community is thrilled to announce a new initiative in collaboration with Greg Tananbaum and Erin McKiernan of the Open Research Community Accelerator (ORCA). We heard loud and clear in our recent survey and at the spring member’s meeting open science session that many of our member organizations are grappling with…
Open Science Community Survey [February 2024]
Document | Survey ResultsThe Spring 2024 Virtual Health Research Alliance Members Meeting included a session on “The Open Science Landscape: Context & Opportunities for Nonprofit Funders“. Ahead of that session, the Open Science Learning Community co-chairs surveyed HRA members on: Open or public access publishing policies Data management or data sharing policies Alignment…
2024 Grants Management System Survey Summary
Document | Survey ResultsThe Health Research Alliance (HRA) Grants Administration Learning Community administered a grants management system (GMS) survey via the HRA email listserv in Spring 2024 to collect information about member usage of and experience with grants management systems. 36 responses were received from 35 identified organizations (and one with no organization…