Open Science Policy Template Language [September 26, 2024]
DocumentHRA has partnered with the Open Research Community Accelerator (ORCA) to develop and distribute open science policy template language for HRA members. The documents linked here were developed by Erin McKiernan and Greg Tananbaum from ORCA. There are two template documents available: Full Open Science Policy Template and Guidelines: This…
September Grants Administration Community Open Mic – Patient Advocates in Peer Review [September 25, 2024]
WebinarThis Grants Administration Community open mic featured a discussion about using patient advocates in the review process! We had pre-planned speakers and a lively discussion in which attendees shared their thoughts, questions, pain points, and pro tips. This webinar was a follow up to a question posted to the HRA…
September AI/LLM Community Call [September 10, 2024]
WebinarHRA’s Artificial Intelligence and Large Language Models Learning Community hosted Dr. Michael Pencina, a respected leader in AI, and Vice Dean for Data Science at Duke University School of Medicine. Dr. Pencina spoke about where AI is heading in the medical and science fields and also discussed CHAI, Coalition for…
Listserv Responses: Childcare Costs for Awardees Attending Scientific Conferences [August 2024]
Listserv SummaryThanks to Belinda Orland from the American Heart Association for starting a discussion about policies and practices for childcare costs incurred by awardees attending a scientific research conference. The document linked above summarizes HRA members contributions (available to HRA members only; you must be logged into the website to download…
August Registry and Biorepository Community Call – Best Practices Open Mic [August 6, 2024]
WebinarDuring this community discussion, attendees utilized their collective expertise to share their lessons learned around biobank clinical site partnerships (compensation, sample and data collection). They also briefly discussed sustainability models, longitudinal data collection strategies, and topics for upcoming webinars.
Program Evaluation Community Call: CSET Map of Science Demonstration [June 27, 2024]
WebinarThe Program Evaluation Community hosted an overview of the Map of Science tool developed by the Emerging Technology Observatory at Georgetown University’s Center for Security and Emerging Technology (CSET). This free online tool collects and organizes the world’s research literature, revealing key trends, hotspots, and concepts in global science and…
June Grants Administration Community Open Mic – Grants Management Systems [June 26, 2024]
WebinarThis Grants Administration Community open mic was a discussion of the recent Grants Management System Survey. Four HRA community members spoke about their experiences with their respective grants management systems: Joan New, Autism Speaks: Transitioning from an in-house system to Fluxx Kristin McGowan, OCRA: SmartSimple Kim Peters, ALS Association: ProposalCentral Sonia…
Follow-Up Discussion: Promoting Diversity in Clinical Trials [June 5, 2024]
WebinarThe DEI Learning Community hosted a working session on June 5 (1-2PM ET) to reflect and discuss further the call from May 1 on “Promoting Diversity in Clinical Trials”. The recording, slides, and related resources from the May 1 webinar are available on the HRA website (https://healthra.org/resources/promoting-diversity-in-clinical-trials-may-1-2024/). The goal of…
Therapeutic Development Learning Community Re-Launch [May 30, 2024]
WebinarIn this community call, the new co-chair team (Mary O’Reilly, Maaike Everts, Raeka Aiyar) facilitated an open discussion to reboot the Therapeutic Development (formerly known as Drugs and Other Therapy Development) Learning Community. This was an informal meeting to reconnect, hear from community members about their interests for future meetings,…
Open Science 101: First Steps to Implementing an Open Science Policy [May 29, 2024]
WebinarThe Open Science Learning Community is thrilled to announce a new initiative in collaboration with Greg Tananbaum and Erin McKiernan of the Open Research Community Accelerator (ORCA). We heard loud and clear in our recent survey and at the spring member’s meeting open science session that many of our member organizations are grappling with…
Open Science Community Survey [February 2024]
Document | Survey ResultsThe Spring 2024 Virtual Health Research Alliance Members Meeting included a session on “The Open Science Landscape: Context & Opportunities for Nonprofit Funders“. Ahead of that session, the Open Science Learning Community co-chairs surveyed HRA members on: Open or public access publishing policies Data management or data sharing policies Alignment…
2024 Grants Management System Survey Summary
Document | Survey ResultsThe Health Research Alliance (HRA) Grants Administration Learning Community administered a grants management system (GMS) survey via the HRA email listserv in Spring 2024 to collect information about member usage of and experience with grants management systems. 36 responses were received from 35 identified organizations (and one with no organization…
Measures of Success Survey [February 2024]
Document | Meeting | Survey ResultsThe Spring 2024 Virtual Health Research Alliance Members Meeting included a session on “Measures of Success“. Ahead of that session, the organizers surveyed HRA members on: Tools or resources they leverage to measure success, and how How they define programmatic success in their organization Means of measurement that align with…
HRA Clinical Trials Membership Survey Results [March 2024]
Document | Survey ResultsA survey was sent to the Health Research Alliance (HRA) membership (100+ nonprofit funders of biomedical and health research) via the HRA Info email listserv in March 2024 to gather information about member organizations’ activities and interest related to clinical trials. This information is intended to be used to inform…
Promoting Diversity in Clinical Trials [May 1, 2024]
WebinarHistorically, clinical trials did not always recruit participants who represented the individuals most affected by a particular disease, condition, or behavior. This has created gaps in our understanding of disease and can impede the quality of health care. Clinicians and researchers should carefully consider the inclusion or exclusion criteria for…
April Misconduct and Ethics Community Call [April 29, 2024]
WebinarOn this Misconduct & Ethics community call, we reviewed key takeaways from the February meeting held at Doris Duke with outside stakeholders on this topic. Using feedback from this community and the February convening, we have developed a draft logic model to guide next steps of this community (see image…
April Grants Administration Community Open Mic [April 17, 2024]
WebinarThis Grants Administration Community open mic focused on sharing tools and tricks (including AI and considerations around LLMs) to make our grants admin lives easier. Participants discussed tools like grants administration system features for automation and post-award management, Smartsheet for project management, and various AI tools for use by both funders…
Benefits of ORCiD for Funders [March 25, 2024]
WebinarThe ORCID US Community team for presented on the benefits of ORCID consortium membership for funders. For example, linking your awards with your awardees’ and reviewers’ ORCID records enables you to: Improve your ability to track the impact of your awards and your awardees, even after the end of the…
March Grants Administration Open Mic: Peer Review [March 21, 2024]
WebinarThis Grants Administration Community open mic discussion was a discussion around PEER REVIEW! We’ve had a lot of pre-and-post-award topic recently and are delighted to revisit one of our favorite and most frequently questioned topics. This can include reducing bias in peer review, best practices for scientific review, the review…
March Research Workforce and Early Career Development Community Call [March 20, 2024]
WebinarIn the past, biomedical research grants were often fiscal activities to advance the science in a specific field or area, acting more as simply a funding source than as a program that engages its grantees. Funders have realized that their impact can be enhanced by creating a holistic approach to…
March AI & LLM Community Call: Patient-Facing AI [March 19, 2024]
WebinarThe March AI & LLM Learning Community discussion centered around AI & LLMs in a clinical context. Jen Hall (American Heart Association) and Craig Giroux (PCORI) lead a discussion around the challenges and responsibilities of funders in clinical trials, patient perceptions of AI, biases in clinical algorithms, the role of…
The Open Science Landscape: Context & Opportunities for Nonprofit Funders – Spring 2024 Members Meeting [March 14, 2024]
Meeting | WebinarOpen Science is the principle and practice of making research products and processes available to all, which fosters collaborations, reproducibility, and equity. This session will explore the ways in which funders can implement open policies that complement those of federal agencies. The session opened with an overview of current federal…
Innovative Methods for Choosing Among Competing Grant Applications – Spring 2024 Members Meeting [March 14, 2024]
Meeting | WebinarMost HRA members fund grants through competitive applications processes. We must sort through the proposals and make decisions on how best to spend our available dollars to achieve the strategic goals of our organization. Most of us use some variation on the process of peer reviews to rank the meritorious…
Measures of Success – Spring 2024 Members Meeting [March 12, 2024]
Meeting | WebinarThis session offers an interactive exploration of the multifaceted nature of success in the context of biomedical and health research funding. Recognizing that the definition of success is not one-size-fits-all, the session will delve into how various funders, ranging from disease-specific organizations to disease-agnostic entities and spanning the spectrum from…