Research Workforce & Early Career Development Learning Community Open Mic Discussion [Fall 2025, HRA Members Meeting, Alexandria]
MeetingAs the Fall HRA Members Meeting comes to a close, this open mic session invites attendees to reflect on the insights, strategies, and challenges discussed over the past two days—particularly those impacting the biomedical research workforce and early career development. Rather than focusing on a single theme, this session will…
Navigating Shifts: Impact of Federal Policy Changes on the Biomedical Workforce [Fall 2025, HRA Members Meeting, Alexandria]
MeetingFederal policy decisions shape the landscape of biomedical research and profoundly influence the careers, stability, and diversity of the scientific workforce. Ongoing shifts are particularly consequential for early career researchers and workforce development programs, which often serve as the entry points into scientific careers. Understanding and anticipating the effects of…
Professional Development Workshop: Storytelling for Impact [Fall 2025, HRA Members Meeting, Alexandria]
MeetingIn this interactive workshop, a professional facilitator will introduce participants to a robust framework for how to narrate and illustrate impact effectively. This framework will help participants how to develop compelling narratives for their specific audiences, craft an effective story arc, and understand the importance of ethical and asset-based storytelling….
What’s the Story? Making Science Funding Meaningful to the Public [Fall 2025, HRA Members Meeting, Alexandria]
MeetingIn today’s rapidly shifting federal funding landscape, it is critical to be able to clearly articulate the importance of the need to fund innovative and transformative research, from basic science to translational and clinical research. Building public trust is one tool that may help enable more support for scientific research…
Why are we here and what impact can we have? A reflection of and vision for biomedical research funding and philanthropic and non-profit involvement [Fall 2025, HRA Members Meeting, Alexandria]
MeetingThis session explores a historical view of how the biomedical research enterprise has been funded and how philanthropic and non-profit organizations fit into this enterprise. Speakers will address the advent of government support for science and its infrastructure in the United States along with how that research funding intertwines with…
Therapeutic Development Community Session – Not Just Funders: Nonprofits as Ecosystem Builders [Fall 2025, HRA Members Meeting, Alexandria]
MeetingBringing medical breakthroughs from labs to patients takes more than funding — it requires intentional strategies to build supportive communities, provide access to the right tools, and connect innovators with the resources they need. This session will explore how nonprofits are stepping into this broader role: protecting ideas, sparking connections,…
Lessons in Rare Disease: Funding, Review, and Sustaining Efforts [Fall 2025, HRA Members Meeting, Alexandria]
MeetingRare disease research faces unique funding challenges—limited donor pools, few established researchers, and persistent gaps in scientific knowledge. This session explores creative funding strategies, from forging partnerships to leveraging non-traditional donors, insights into the proposal review process, and examines how to catalyze progress in under-resourced fields. We’ll discuss how to…
Open Science 202: Monitoring Open Science Compliance of Awardees [November 5, 2025]
WebinarThis session of the Open Science Learning Community discussed monitoring Open Science compliance of awardees. The group discussed why open science compliance matters, what tools are available, and what current practices entail. There was also an overview of compliance components as they relate to publications, data and code, and tangible…
Program Evaluation Community Call – Introducing RAiD: A Persistent Identifier for Research Projects [October 23, 2025]
WebinarIn this session, participants learned about RAiD (Research Activity Identifier), a Persistent Identifier (PID) for research projects that is recognized as the ISO 23527:2022 international standard. Established in 2022 as an international standard for identifying, tracking, and recognizing research projects, RAiD is a new PID that can be used in addition to ORCID…
October Grants Administration Community Open Mic [October 22, 2025]
WebinarThis Grants Administration Community Open Mic focused on non-compliance (e.g. not submitting reports to closeout, returning unspent funds, research misconduct, etc.) and how different organizations handle such issues. As a reminder, the Grants Admin Community holds monthly webinars in an open mic-style format—unless there is a topic that lends itself to…
Program Evaluation Community Call: Connecting Grants to Research Advances and Patient Outcomes [September 29, 2025]
WebinarThe HRA Program Evaluation Community explored “Connecting Grants to Research Advances and Patient Outcomes” through multiple avenues during this session. Lucie Duluc, PhD, EMBA, Head of Impact Evaluation at British Heart Foundation and Nicole Litwin, PhD, RD, Senior Manager, Scientific Impact at Crohn’s & Colitis Foundation, shared their efforts in…
Grants Administration Community Open Mic – Revised Grants Administration Handbook [September 24, 2025]
WebinarThe Grants Administration Learning Community held this open mic focused on the revised HRA Grants Administration Handbook (must be logged in to view)! This session reviewed the table of contents/topics included, discussed best use cases of the handbook, and answered any questions the group has/solicited feedback.
Open Science and Registry/Biorepository Joint Community Meeting: Financial Program Sustainability in the Age of Open Science [September 17, 2025]
WebinarAs the demand for data sharing and transparency continues to grow, programs that manage registries and biorepositories face increasing pressure to operate within the principles of open science while also ensuring their long-term financial and operational stability. This joint community meeting brought together leaders from across the nonprofit and research…
HRA Research Workforce & Early Career Development Learning Community Open Mic Discussion: Evolving Biomedical Research Funding with the Current Times [September 15, 2025]
WebinarThe HRA Research Workforce & Early Career Development Learning Community held an open mic discussion to learn how various funders are adapting their funding programs and mechanisms to better support the research workforce during federal budget cuts. This session invited input from across the research community to explore innovative and…
Getting the Most Out of Your HRA Membership [August 14, 2025]
WebinarHealth Research Alliance (HRA) staff presented a short webinar to inform attendees about the activities and resources available to HRA members. Check out the recording and linked slide deck for more information about HRA’s events, activities, and resources.
Program/Mission-Related Investments Discussion [August 12, 2025]
WebinarMembers of the Health Research Alliance gathered for a discussion on Program- and/or Mission-Related Investments (PRI/MRIs). The purpose of this discussion was to identify peer funders who are active in this space, or who may be considering PRI/MRIs, and to share best practices.
Non-Profit Innovation: Repurposed Drugs Meet AI [July 24, 2025]
WebinarNon-profits are uniquely positioned to drive innovative, low-cost approaches to new treatment options. In this talk co-hosted by the Therapeutic Development and AI/LLM Learning Communities, Dr. Laura Kleiman, founder of Reboot Rx, shared how her organization uses AI to identify new cancer treatments from existing generic drugs—making therapies more accessible…
Misconduct Policy Language Examples [July 2025]
Document | Example Policy LanguageThis document is designed to guide Health Research Alliance (HRA) members in creating policy language regarding Research Misconduct and Behavioral Misconduct within their Award Letter Terms & Conditions and/or Grantee Agreements. Research misconduct and behavioral misconduct are distinct types of misconduct, so this document is broken into sections devoted to…
Grants Administration Community June Open Mic [June 25, 2025]
WebinarThis Grants Administration Community open mic focused on award agreements/grant terms & conditions, as well as other post-award processes! In particular, we discussed (1) indirect costs (amounts, definitions), (2) IP/revenue sharing provisions and other venture philanthropy considerations, (3) if your organization has an internal legal department and/or utilizes external legal…
Listserv Summary: Patient Registry Vendors [June 2025]
Listserv SummaryThanks to Angela Dobes from the Crohn’s & Colitis Foundation for starting a discussion about vendors used by HRA members for patient registries. The document linked above summarizes HRA member responses.
Open Science 201: Training Techniques for Awardees [June 11, 2025]
WebinarThe Health Research Alliance Open Science Learning Community hosted a webinar to learn about training opportunities, repositories, and techniques to train your awardees on how to be in compliance with open data policies. There was also a review of consultative services available while establishing your open data and licensing policies….
Program Evaluation Community Call: Assessing Long-Term Impacts of Funding [May 1, 2025]
WebinarThis Program Evaluation Community webinar explored different approaches to assessing the long-term impact of funding with fellow members Diane Bovenkamp (VP, Scientific Affairs at BrightFocus Foundation), Brent Dolezalek (VP of Operations, JSMF), and Jen Mortensen (National Director, Program Evaluation, American Heart Association). The discussion covered a range of methodologies, from…
Grants Administration Community: April Open Mic [April 23, 2025]
Survey Results | WebinarThis Grants Administration Open Mic began with a discussion around the competitive LOI process, which you might have seen on the listserv as an active discussion topic with a follow-up survey. Eryn Marchiolo from the Rheumatology Research Foundation joined us to present the survey results, and a robust discussion followed….
HRA Federal Policy Series: Member Priorities and Actions [March 25, 2025]
Survey ResultsThe Health Research Alliance (HRA) held a call about the impacts of federal policies and events on nonprofit funders and biomedical science. During this session, we shared data collected in a recent survey of HRA members’ priorities and actions (in aggregate; no identifying information was be shared). We also provided…