Board on Research Data and Information/US CODATA
November 1-2, 2017 National Academy of Sciences The mission of the Board on Research Data and Information (BRDI) is to improve the stewardship, policy, and use of digital data and information for science and the broader society.
Data Sharing Goals for Nonprofit Funders of Clinical Trials
November 30, 2017 Sharing Clinical Trial Data Action Collaborative: Data Sharing Goals for Nonprofit Funders of Clinical Trials National Academy of Sciences
Big Data Sharing Meeting [September 19, 2017]
Intro to Sharing Big Data [Webinar #2, August 10, 2017]
WebinarIntro to Data Sharing [Webinar #1, July 11, 2017]
WebinarThis one-hour webinar was the first of two sessions that introduced participants to the various types of data and data sharing platforms currently available. JOURNAL RESOURCES REFERENCED DURING THE WEBINAR PLOS Data Sharing References PLOS Policy PLOS Recommended repositories A Registry of Research Data Repositories Data policy FAQs Preparing clinical…
Funder Data Sharing Policies: Overview and Recommendations [RWJF Report]
A report funded by Robert Wood Johnson Foundation and written by Stephanie Wykstra. Research transparency – sharing data and other materials for further research and re-analysis – is on the rise. Many people and institutions in the research ecosystem have pointed to potential benefits of transparency, from accelerating scientific progress to increasing reliability…
HRA Member Data Sharing Policies
The HRA member data sharing policies that Heather McCartney, HRA’s Data Sharing Intern, has collected can be found above. (To submit your data sharing policies email Maryrose [at] healthra [dot] org)
US Food and Drug Administration (link)
NINDS
QB3
QB3 includes five incubators, two seed-stage venture capital firms, and a special initiative in medical devices called the Rosenman Institute. QB3 supports University of California researchers and empowers Bay Area entrepreneurs to launch startup companies and partner with industry.
AlzPED database
AlzPED is a database for preclinical studies of Alzheimer’s disease. It includes information on animal models, biomarkers, therapeutic agents/targets, patents, etc
JLABS: part of Johnson & Johnson Innovation
JLABS is a part of Johnson & Johnson Innovation. It is a life science incubator with an aim towards developing healthcare products from current scientific discoveries through a “capital-efficient, resource-rich environment.”
Clinical Trials Transformation Initiative
NCATS: “Toolkit for Patient-Focused Therapy Development”
FasterCures “Issues” and “Tools you can use”
FasterCures also has a tab of “Issues” along with links to “Tools you can use” on those topics, a few of which are listed above. Other Issues with links are Collaborations, IP, Management and Accountability, R and D System, Value and Coverage, and Venture Philanthropy. There are also case studies available….
FasterCures Toolkit on the TRAIN website
Link to the a toolkit on the TRAIN website which is broken down by different types of partnerships. On each of the above sites they have links to “Tools you can use.” These include various PDFs or word docs for checklists or agreement templates, informational websites, etc.
Rescuing U.S. Biomedical Research from Its Systemic Flaws [Proceedings of the National Academies of Sciences, April 2014]
In a Proceedings of the National Academies of Sciences publication by Bruce Alberts, Marc Kirschner, Shirley Tilghman and Harold Varmus (2014). Leading academics in biomedical research described a series of issues they felt were leading to a hyper-competitive environment in the US academic system, negatively affecting young researchers, and potentially…
Shaping the Future of Research: A Perspective from Junior Scientists [Webinar, September 2015]
WebinarJessica Polka, PhD, and Kristin Krukenberg, PhD, both of Harvard Medical School, organized of the Future of Research Symposium. In a webinar, they presented the primary issues they were seeking to address.
Early Career Awards [2011 HRA Compilation – Excel file direct download]
HRA Workforce Development Survey 2018 [Findings Report – Direct Download]
The Report Card for Gender Equality [New York Stem Cell Foundation, 2017]
NYSCF’s Institutional Report Card for Gender Equality helps to incorporate the Seven Actionable Strategies for Advancing Women in Science, Medicine, and Engineering into its own programs and encourage others to do the same.
Seven Actionable Strategies for Advancing Women in Science, Medicine, and Engineering [Cell Stem Cell, March 2015]
Achieving gender equality in science will require devising and implementing strategies to overcome the political, administrative, financial, and cultural challenges that exist in the current environment. This forum proposes an initial shortlist of recommendations to promote gender equality in science and stimulate future efforts to level the field.
Approaches to Achieve Gender Equity in STEM Faculty: Successes, Hurdles and Opportunities for Collaboration [HRA Members Meeting. Spring 2016]
This session presented data on gender inequities in STEM faculty and on the new interventions that academia and funders have implemented to promote retention and advancement of female faculty conducting research on human health. Stephanie Abbuhl, MD, Professor & Vice Chair Faculty Affairs, Department of Emergency Medicine and Executive Director,…
Strategies for Increasing Diversity in the Workforce [HRA Members Meeting, Spring 2018]
This session focused on the challenges and opportunities of diversity and unconscious bias that women and minorities face in peer review in academic science. Anna Kaatz, PhD is the Director of Computational Sciences at the UW-Madison Center for Women’s Health Research. Shirley Malcom, PhD is the head of Education and…