Resources for Members

NFRI Workshop [November 7, 2018]

The Nonprofit Funder -Research Institution (NFRI) partnership hosted its second workshop to advance discussions on IP and technology transfer, reimbursement of research operating costs and how to streamline administrative requirements. Like the first meeting, the second meeting was also supported by the National Academies of Sciences, Engineering and Medicine’s (NASEM)…

HRA Regional Meeting: Metro DC [October 16, 2018]

The theme of the October 2018 Regional Members Meeting (hosted by HHMI) was Diversity and Inclusion.  After an active networking breakfast, Dr, Hannah Valantine, NIH’s first Chief Officer for Scientific Workforce Diversity, kicked off the meeting.  Dr. Valantine presented compelling data as to why diversity matters.  For instance, her data…

Understanding Visual Intelligence & Data Visualization [Webinar, October 24, 2018]

The Donaghue Foundation and the Health Research Alliance joined with HealthDataViz, a Boston firm that specializes in helping healthcare organizations design and present visual displays of data, and offered this webinar on the fundamentals of data visualization. The webinar: Offered guidance on best practices for creating and distributing visualizations Provided…

Listserv Responses: Culling LOIs [October 2018]

What is your process of LOI review for a program or mechanism?  What is the count of LOIs you get and what number do you allow to submit full applications?

How NCI is Leading on Data Sharing [Webinar, October 9, 2018]

The Data Sharing Working Group hosted a webinar featuring Jaime Guidry Auvil, the Director of NCI’s Office of Data Sharing. Jaime shared the efforts that are in motion at NCI and NIH that aim to promote the data sharing ecosystem. Importantly, she reported on the impressive steps that NCI is…

Finding, Evaluating, and Promoting the Impact of your Research for Nonprofit Funders – how to use the new Dimensions functionality (led by Dimensions). [Webinar, September 18, 2018]

To identify and showcase how organization’s resources have made an impact attendees learned how to answer questions such as: Did your funding keep researchers in the field? Has your research impacted policy? Are there links between patents and your funding or publications? Did publications from your research become prominent, widely…

ORFG “Open 101” Tip Sheets for Research Stakeholders

ORFG has made available a suite of resources designed to help specific audiences understand the benefits of open science. Comprised of a mix-and-match set of tip sheets designed for grantees, program officers and staff, and foundation leadership, the materials can help research funders build effective campaigns for the adoption of…

European Funders Announce “Plan S” for Open Access

Indirect Costs (aka “F&A”): There are more to IDC’s than you think [Webinar, September 6, 2018]

In this webinar, we continued the productive dialogue between Universities and Funding Organizations.  We discussed what are “indirect costs” – what are behind these expenses, how may some of these be research project-specific costs, what does this all mean. Be informed and understand the nuances of this discussion as we…

FIRST Group Survey on Funder Institution Relations

Nonprofit Funding Models

The philanthropic sector in general and the membership of the Health Research Alliance in particular, is composed of a diverse set of organizations who have contributed to advancing biomedical research by developing human capital; building knowledge and expanding scientific disciplines; supporting institutions; stimulating innovation; translating discoveries into cures, therapeutics and…

How Funders Can Diversify the Healthcare Workforce [HRA Members Meeting, Spring 2018]

Evidence has shown that a diverse healthcare workforce not only improves patient care outcomes, it also allows organizations to be more productive, creative and innovative. Still, minorities face slower promotion rates and are significantly less represented in leadership and academic career positions. At the Spring 2018 Health Research Alliance Members…

Therapeutic Development Toolkit of Toolkits

This “toolkit of toolkits” will enable member organizations to more easily identify and access existing and up-to-date resources relevant to the Therapeutic Development Learning Community goals. Drug and Other Therapy Development – General References U.S. Food and Drug Administration – for the latest developments in regulatory policies and regulatory science. NORD…

University-Foundation Relations – BIO Session Summary [FasterCures, June 2015)

In recent years, the nonprofit and academic communities have acknowledged that relationships between nonprofit disease foundations and research institutions are evolving. Although in many ways this evolution presents new and exciting opportunities, these changes have also brought about new conflicts. To advance the discussion around these relationships and brainstorm new paths forward, FasterCures…

University-Foundation Relations: From Transactional to Transformative Partnerships [FasterCures, September 2014]

University-Foundation Relations Session on Indirect Costs [FasterCures, November 2016]

FasterCures invited a small group of stakeholders to participate in a private session focused on indirect costs, during the 2016 Partnering for Cures conference in New York, NY.

Calculating Overall Facilities and Administrative Costs

Breaking Down the Costs of Federal Research at Universities [Association of American Universities, March 2017]

Keeping the Lights On [Nature, November 2014]

Every year, the US government gives research institutions billions of dollars towards infrastructure and administrative support. A Nature investigation reveals who is benefiting most.

Listserv responses: HRA Members’ Evaluation Platforms [May 2018]

Use of HRA Analyzer (formerly Reporter) and Researchfish to Evaluate Your Grants Portfolio [Webinar, August 30, 2018]

Arun Karpar from Autism Speaks highlighted the use of HRA Analyzer (formerly Reporter) data; while Suzanne Rix from the Association of Medical Research Charities demonstrated the utility of Researchfish.

Spring 2018 Members Meeting Session: ORCID Reducing Burden and Improving Transparency (ORBIT) Project

ORBIT is a strategy to reduce investigator burden and improve funder efficiency through the use of persistent identifiers. ORBIT is a partnership between the NIH and ORCID that expands the ORCID data model to collect faculty profile information. The presentation described efforts to assign Digital Object Identifiers (DOIs) to grants…

Open Research Funders Group Resources

The Open Research Funders Group (ORFG) is a membership-based partnership of funding organizations committed to the open sharing of research outputs.

Implementing a System to Enable Credit for Data Sharing

April 9, 2018 The Association of American Medical Colleges (AAMC), the Multi-Regional Clinical Trials Center of Brigham and Women’s Hospital and Harvard (MRCT Center), and the New England Journal of Medicine (NEJM) launched the Credit for Data Sharing initiative to describe and implement a system to appropriately credit researchers for sharing data.