Agenda items covered during the August meeting of the Working Group: Snapshot of Registry and Biorepository Status and Capabilities Survey Results Business Plan Development Purpose and Role of Business Plan... read more →
The cochairs presented the results of a precall survey to gauge topic interest and get a sense of where HRA members are with respect to registries and biorepositories. The powerpoint... read more →
Breakout Session: A Natural History of HRA & Patient Registries Informed by member and non-member experiences, challenges, questions, and accomplishments, this session will present and discuss organizations’ patient registries efforts.... read more →