[[email protected]]

Hi,

TSC Alliance has allowed board members who are researchers to apply for grants. However, about five years ago we began funding only postdocs and early-stage investigators (as defined
by NIH policies).

Board members are required to leave the room during discussion and voting on slates of grants which include anyone from their institutions.

Best wishes,

Steve

—————————————————————-
Steven L. Roberds, PhD | Chief Scientific Officer

TSC Alliance® | Hope no matter how complex^TM
Main: 301-562-9890 | Direct: 240-638-4645

tscalliance.org

Join me at the 2026 TSC World Conference from July 30 – August 1 in Aurora, CO.
Register today!

From: HRA Forums <[email protected]>

Sent: Thursday, March 12, 2026 2:09 PM
To: Steve Roberds <[email protected]>
Subject: New post in Info: “Researcher board member policies?”

Caution: This email originated from outside of the organization. Do not click links or open attachments unless you recognize the sender and know the content is safe.

[[email protected]]

Hi Angela,

For context, TSC Alliance has 25 staff, 7 of whom are scientists at some level (3 BS, 2 MPH, 2 PhD). We do not have a structured way of educating non-scientific staff on the science
of TSC, but those in outreach, communications, and development tend to pick it up from presentations they attend, or from helping prepare materials. Because we deal with a single rare genetic disease, it seems people pick up some key basics pretty well because
the disease is at the heart of everything we do.

We set up TSC Academy a few years ago primarily to educate our community volunteers who are leaders in their local TSC communities and/or who are advocates for federal funding of TSC research. It is free, so you are welcome to log in and look at as much as
you wish (https://tscalliance.tovuti.io/). We have an expectation that volunteers for whom we pay for travel to come to advocate on Capitol Hill will have completed the relevant courses of TSC Academy.

Steve

—————————————————————-
Steven L. Roberds, PhD | Chief Scientific Officer

TSC Alliance® | Hope no matter how complex^TM
Main: 301-562-9890 | Direct: 240-638-4645

tscalliance.org

From: Health Research Alliance – Do Not Reply <[email protected]>

Sent: Tuesday, September 9, 2025 4:47 PM
To: Steve Roberds <[email protected]>
Subject: New reply in Info: “Science education for non-scientific staff”

Caution: This email originated from outside of the organization. Do not click links or open attachments unless you recognize the sender and know the content is safe.

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