Diversity in Registry and Biorepository Research To Advance Precision Medicine [November 4, 2024]
The Registry & Biorepository and DEI Learning Communities hosted a joint webinar on Diversity in Registry and Biorepository Research To Advance Precision Medicine. We heard from Janeth Sanchez, Acting Director of Health Equity for the All of Us Research Program about how their program engages populations underrepresented in biomedical research and considerations for data usage in research. We also discussed how those strategies might change between enrollment and encouragement of longitudinal participation.
Speaker:
Janeth Sanchez, PhD
Acting Director of Health Equity | All of Us Research Program, National Institutes of Health
Janeth Sanchez, Ph.D., is the acting director of health equity for the All of Us Research Program. In this role, she provides leadership and high-level expertise to improve equity, diversity, inclusion, representation, and accessibility across research and precision medicine initiatives.
At All of Us, Dr. Sanchez leads transformative efforts aimed at promoting health equity through the development and implementation of the All of Us Health Equity Research Agenda. This strategic framework outlines innovative strategies for addressing disparities in health outcomes using All of Us data. Dr. Sanchez also coordinates scientific and programmatic activities across the program and NIH to foster a collaborative approach to advance equity in the research enterprise.
Before she joined All of Us, Dr. Sanchez served as program director in the Healthcare Delivery Research Program at the National Cancer Institute (NCI), where she led the Addressing Social Risks in Cancer Care initiative. She served on the inaugural NCI Equity Council Systematic Tracking and Evaluation of Equity Activities Working Group to promote trans-NCI efforts in health equity. She has also led various research studies focused on promoting high-quality cancer care through multilevel interventions, especially among populations experiencing health disparities. Drawing upon more than 15 years of extensive community outreach and engagement experience, Dr. Sanchez brings an unwavering dedication to advancing health equity so that everyone has the opportunity to achieve their highest level of health and well-being.
Dr. Sanchez holds a doctorate in health services, with an emphasis on evaluative sciences and statistics, from the University of Washington and a Master of Public Health in community health education from New Mexico State University.
Registry & Biorepository Learning Community Co-Chairs:
- Angela Dobes, Crohn’s & Colitis Foundation
- Elise Hoover, Foundation for Sarcoidosis Research
DEI Learning Community Co-Chairs:
- Kavita Bhalla, Conquer Cancer, the ASCO Foundation
- Zoë Fuchs, TSC Alliance
- Lindsay Redman Rivera, Health Resources in Action