Patient Engagement [HRA Members Meeting, Virtual, Spring 2020]
- Recording
- Susan G Komen program description
- PCORI program description
- American Heart Association program description
- Tourette Association program description
This session focused on the strengthening trend of incorporating the patient voice and values into funded research efforts. Patients are invited to be involved in various steps along the project-funding continuum: from engaging in setting research priorities, evaluating research proposals, participating in the research team, and receiving updates and feedback during their participation in clinical research projects.
Moderator
Krissa Smith , PhD
Director, Research Programs | Susan G. Komen
Presenters
Michelle Johnston-Fleece, MPH (Presentation)
Senior Program Officer | Patient-Centered Outcomes Research Institute
Alana Welm, PhD (Presentation)
Professor of Oncological Sciences | University of Utah School of Medicine
Sandi Spivey, MBA (Presentation)
Advocate | Metastatic Breast Cancer Patient Advisory Council
Diana Shineman, PhD (Presentation)
Vice President of Research and Medical Programs | Tourette Association of America
Dean Frohlich, PhD (Presentation)
Scientific Review Officer | Conquer Cancer, the ASCO Foundation
Angela McCarty, MS (Presentation)
Associate Manager, Peer Review | American Heart Association
Glendon Zinser, PhD (Presentation)
Scientific Grants Manager | Susan G. Komen