The NIH is soliciting public input on proposed key provisions that could serve as the foundation for a future NIH policy for data management and sharing. Comments using the process... read more →
Vera Mucaj introduced Datavant, a San-Francisco based healthcare startup that helps build the pipes for healthcare data sharing at the patient level. Datavant enables linking of patient-level healthcare data across... read more →
The Data Sharing Working Group hosted a webinar featuring Jaime Guidry Auvil, the Director of NCI’s Office of Data Sharing. Jaime shared the efforts that are in motion at NCI... read more →
The Open Research Funders Group (ORFG) is a membership-based partnership of funding organizations committed to the open sharing of research outputs.
April 9, 2018 The Association of American Medical Colleges (AAMC), the Multi-Regional Clinical Trials Center of Brigham and Women’s Hospital and Harvard (MRCT Center), and the New England Journal of Medicine (NEJM) launched... read more →
November 1-2, 2017 National Academy of Sciences The mission of the Board on Research Data and Information (BRDI) is to improve the stewardship, policy, and use of digital data and... read more →
November 30, 2017 Sharing Clinical Trial Data Action Collaborative: Data Sharing Goals for Nonprofit Funders of Clinical Trials National Academy of Sciences
This one-hour webinar was the first of two sessions that introduced participants to the various types of data and data sharing platforms currently available. JOURNAL RESOURCES REFERENCED DURING THE WEBINAR... read more →