Community Description

Registries and biorepositories bring significant value and benefits to the community they are serving. However, there are abundant challenges with available technology platforms, recruitment, data types, standardization, governance (access and sharing), participant engagement and of course, cost/sustainability. Given building and maintaining registries and biorepositories are large endeavors, HRA launched the Registry and Biorepository Community which  focuses on learning from peer organizations and outside experts to best create and maintain an impactful and sustainable registry and/or biorepository.