Hi Angela,
For context, TSC Alliance has 25 staff, 7 of whom are scientists at some level (3 BS, 2 MPH, 2 PhD). We do not have a structured way of educating non-scientific staff on the science
of TSC, but those in outreach, communications, and development tend to pick it up from presentations they attend, or from helping prepare materials. Because we deal with a single rare genetic disease, it seems people pick up some key basics pretty well because
the disease is at the heart of everything we do.
We set up TSC Academy a few years ago primarily to educate our community volunteers who are leaders in their local TSC communities and/or who are advocates for federal funding of TSC research. It is free, so you are welcome to log in and look at as much as
you wish (https://tscalliance.tovuti.io/). We have an expectation that volunteers for whom we pay for travel to come to advocate on Capitol Hill will have completed the relevant courses of TSC Academy.
Steve
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Steven L. Roberds, PhD | Chief Scientific Officer
TSC Alliance® | Hope no matter how complexTM
Main: 301-562-9890 | Direct: 240-638-4645
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Sent: Tuesday, September 9, 2025 4:47 PM
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Subject: New reply in Info: “Science education for non-scientific staff”
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